Re: Fissy-Colonoscopy;Lecia CRS/GYN appts.

[Fissulyna]

I feel like crying but keep it in with tremendous effort and smile and make jokes out of fear that they will just dismiss me as "depressed" and not even look into my physical problem : ((( . When I get into the car I cry my eyes out and hear all of their insults playing over and over in my head and than I feel almost emotionally raped, degraded and angry that I did not say anything back - I hate myself for playing stupid just for the sake of MAYBE getting a proper treatment and just basic level of respect. I think that abused children have similar approach toward their abusers - always coming back hoping to find a true love just to get opposite of that : (. We swallow our tears and our pride to try just one more time even though we know deep down that nobody truly gives a damn .

Jen - I was shocked when I read your story - if he only knew how much you prized him - if he only knew ... I am so sorry buddy - we trust them with our lives and they perceive out tears as bare annoyance -

[Corsi]

.....My great doctor, the one who I love so much made me feel bad before surgery. We had a miscommunication....... and he said, "OMG - she cries all the time". Then he talked to me and told me it was not a hemmiectomy - it was the "S" thing. He did not know I heard and I still respect him, but it did hurt my feelings. It is true I usually cry when I see him, but he has no idea about how much emotional upset these butt issues have caused me.

What's wrong with them? Having a health problem and being in pain do something to people...why do they think we cry? Because we like it? We are hysterical? Or could it be because constant pain leaves you weak and fragile?

It's disrespectful!

To all of you Corsica

(Lecia, I see you are blue and I would like to support you more and give advice, but I have to admit my English isn't good when it comes to understanding medical English What I can give you is a )

[Tabby]

Lecia
Please…Don’t say that ever !
You are worth it and you deserve to be better
I think you are right to keep searching until you can find a doctor who wants to help you, there just has to be a reason for your pain.
My mum has been through this unknown so i can truly understand how you feel, for years my mum was told there was nothing wrong with her and she was the neurotic one When we moved to Scotland our family GP now wanted to help my mum find a resolve, the end result was Endometriosis.

Is this mayos an option for you, I like this idea of a team working for you until they find the problem ?
Please try to be strong hold on some more…
You are our inspiration and we are praying everyday for you to be better
Sending you a very very big hug

Corsi my English is great but still I find it difficult to find the words of comfort!

I have just been to my friends graveside today and prayed for you Lecia , that’s goes for all our special boardies here too, I asked him to take extra special care of us all and our familys
I just hope he can hear my prayers…
God bless to you all
xx

[Jen]

Oh, and I forgot to add the part about the nurse too...

So the doctor left and the nurse comes back in to bring me to the OR. She asks me what I do for a living and I told her I was a RN student. She laughs and says, "You need to toughen up if you ever want to make it in this career feild" (she was referring to my crying). What? I am not going to let some cow tell me I need to toughen up! What I need to do is learn for all the crappy nurses mistakes and be compasionate torwds my future patients. Yeah lady - she would need to "toughen up" too if she had butt issues for 18 months and she was only 28 years old. She made me more mad than anything.

[Tootie]

Thanks everyone for reassuring me that I am not alone in my tears. I don't know why docs act like it is so unusual then since I am not the only one. I can't believe the nurse said that to you Jen. That is most unprofessional and none of her beeswax. It is much different to be the patient than it is to be the nurse. And to have your bottom operated on I think is a whole other ballgame. She sounds like she is burnt out and just petty.

I don't go to pelvic therapy as much as I should as it is an hour drive each way and it kind of undoes the therapy. I wish I could find someone closer. I am seeing a pain doctor this week and will ask him about all the different treatments. He does something called prolotherapy which primes your body to heal itself. They are injections, but I don't know if I am a candidate or not.

Thank you Tabby and Jo for your prayers. You are such a great support team for me. I appreciate your reassuring me I am worth it and telling me about your mom, Tabby. Her experience gives me some hope that something can be done even if it takes a long time and determination finding the right person.

How are you feeling today, Fiss? I wish I could hold it in better. I guess it is just becoming such an automatic response these days. Thank you for your friendship.

With love,
Lecia

[Jen]

Lecia -

We will always be here for you! I am just so sick of these doctors & nurses being so rude! They have absolutly no idea! Not a dang clue!

A while back, my sister got a new job at a hospital. Around the same time, she developed a really bad respitory infection. She went to the ER and was coughing and crying it hurt so bad. The respitory therapist was in the room next to her and told her to stop being so dramatic and she needed to calm down. He said if she kept coughing he was going to go in her room and intabate her. I guess he was VERY rude to her. Anyways, about 10 minutes later he found out she was a new provider at the hospital (she is a anesthesiologist) and was actually in charge of him, as he is respitory therapy. HA HA HA!!! I love that story! He must have been so ashamed of himself!!!!

I love the picture of you and Molly - Lecia! Are your girls enjoying her? My son loves our 2 yorkies and actually said Lucy (the females name) for the first time today. Dogs are so much fun! And they love you unconditionally...

[val]

Lecia, I'm so sorry you feel so down. These doctors are very lucky they dont have to go what we go through. But then anyone who's not had these problems will never, ever understand the misery that they cause. And because of the area thats sore its more a "funny" illness to everyone. I have had so much more sympathy from family/friends about my neck and yet, horribly painful it is, I would much rather that than butt-pain (now I have both, but thats beside the point!! )

I saw many, many doctors and complimentary therapy people in my endless battle to find someone to listen to my thyroid problem. I was on a diet of less than 1000 calories a day, all salad, veg, nothing fattening whatsoever, I even kept a food diary to show my doctor, because of all the weight I'd gained. His response? Eat less!! He should have known that would slow the metabolism down. I was so tired I could hardly move and my hair fell out in clumps, and hypoglyceamic.It was so obvious what it was. They even gave me orlistat and reductil! Then 4 years later I was given thyroxine!!
So, listen to your body, not the doctors. You know you're in pain, you know your own body and you know when something's wrong. Just keep on and on until you find out the problem. Do you take your hubby in with you to these doctors? I've found they will take me so much more seriously if my hubby tells them what's wrong. Most of these docs are men and seem only able to relate to other men - sad but true. Also, I think men are naturally more assertive, which is definately an asset when dealing with health "professionals".

You ARE worth it. Dont give in, dont give up. We all love you and want you to get better, and its just a matter of finding the right doctor who is clever and astute enough to realise whats wrong.

Its disgusting the way you and Jen have been treated. Nurses and doctors should be compassionate and sympathetic, and if it wasn't for their patients, they wouldn't have a job anyway!

[juney]

lecia and jen - i'm sorry your drs have been so incompassionate! i've definitely experienced that too and it's sooo aggravating. my kaiser crs was such a cold b**ch!! i was freaking out crying, trying to explain how this is affecting my life the past 2 years and all she said was "i've seen so much worse, this isn't even bad". another time, i went to the ER when i was bleeding heavily and the nurse there said "you'll just have to deal w/ this for the rest of your life, get used to it". surprise surprise i had fibroids that were easily removed and now i'm back to normal in that aspect. some of these nurses/drs need to have their licenses revoked. bedside manner is so important in that field. not more important than experience obviously, but it definitely helps to have a compassionate dr. don't let these insensitive jerks get you down!!

[cherylk]

Lecia,

I just returned home from visiting my son. Thanks for what you sent. Hang in there, sister. I will keep praying for you.

hugs,

Cheryl

[Tabby]

Lecia
You are so loved What Jen said was right there is someone ready to help you – you just haven’t found them yet !
Never give up and never ever say you are not worth it !
You look so pretty today :sleepb: I love that photo of you and Molly ! She is cute, I am so glad you found her
Give her a big kiss from me !
xx

Jen
I am sorry for the underhanded insensitive remark from your doctor, you are going to make the best nurse ever and if there is one positive thing that has come from your suffering is that you know how to treat patients with the respect they deserve !

[happyass]

re: lecia's photo with molly.....just delovely. it's so, just perfect. add that one to the lecia calendar please - maybe that can be for one of the spring or summer months.

[Tootie]

You are so good for my ego, Happy. Thank you!