My Break through with stubburn fissures and fistulas

I have been suffering from 6 and 12 position fissures for the past three or more long years. I went through two major surgeries no luck. Every time they went in they found a lot of inflammation and the fissures wouldn’t close up they would just reopen. I went to a wound clinic for a year to apply this acid base to close the wounds. No luck. Finally I meet the top surgeon rated in World News Report in the USA and his name is Dr. Philip Huber Jr. He is in Dallas at Medical City and he teamed up with Dr. Lacey at Baylor a head of internal medicine and both Docs are professors at Southwestern Medical Center in Dallas. Both of them saw my fissures and open fistulas and never saw a case of so much damage and pain anyone had to endure. I was at a point where I had enough and my wife and family had enough. They both put their heads together and said even you don’t test for Chrons but it looks like Chrons. Both have major experience with Chrons and well respected in their field. They put me on an autoimmune suppressant drug Amuran azathioprine and told me you have a 18 percent chance it would work and 6 weeks for the med to kick in to start working. The good news is my body accepted the drug in 3 weeks and starting healing. This past Friday all my external and internal fissures are gone except one small one the size of a match head. They both said they never saw anyone metabolize the drug that quick and fissures and fistulas heal in that short amount of time. They both said it was a miracle.
Now the bummer. My wife has checked out emotionally and said she is unhappy. I know its something know one wants to hear or talk about. I have been saved and now this. Since the 3 year void left me removed from my family due to pain and what have you.
I wanted to spread the news about this drug and tell others don’t let surgeons tell you to keep hacking away at inflamed tissue when you don’t need to. Mine were deep and a drug cured them. You have to find a doctor that is willing to give you the drug.

Wish me luck in the family department and let me know if you have any questions

B

i tested 4 times negative even though there was inflamtion present for more than a year. These docs here i am talking about said Chrons is hard to detict on a test and they go by site and symptoms. They seen cases like this since 1977 and cured them by this drug to close them. The said fissures go hand in hand with Chrons.

I am so glad to hear you found the answer to your problem finally, dear Bernard !!!

I absolutely agree - anybody with non-healing fissures , especially if there are multiple sites involved and if they look like ulcers and not just cuts - should definitely try strong anti- inflammatory medications because chronic inflammation is the most probable cause of such fissures !!!! Formation of fistula is also a big warning sign for Crohn

I am so sorry to hear that you have family problems though , and I hope it will resolve with some family canceling !

Wishing you the best of luck and may you stay healed forever !!!!

Here is the log of who took the drug Amuran and the outcomes. Like with all meds some didnt have the same experience i had see link below

http://www.askapatient.com/viewrating.asp?drug=16324&name=imuran

B

Oh, of course dear Bernard - everybody is different : ) !!!

But there is a bunch of different meds for Crohns also - so people should try and try until they find one that helps them !

Thanks for sharing your experience and info - I am sure it will help many on this forum : ))

That is great Bernard.
How are your symptomes now? Are you free from pain and discomfort?

Sorry about the family issue but now that you are healty again they will see the real you. I hope it resolves. Thanks for the info

That is wonderful news Bernard. I am so delighted that at last you have found the answer. I wish Juney could read this post by you, it may be something she could investigate.

I will be praying that your family life comes around, too.
What a mixed blessing, indeed!

I will be praying that your family life comes around, too.

I will be praying too : ((( - it is "in sickness and in health " promise , after all ...... And girls need their daddy so much , I really hope you will get reconciled very fast .

Lars,.
I am free of pain, inflamation etc. All is left is a small openning the size of a match head. I will take that over large deep wounds,..fissures and inflammation. Please feel free to look into this. i remember reading your posts and it seemed we had the same type of inflamation this caused these problems.

Thanks to all for you comments on my family. Hopefully counceling can dig us out and put us back together. Problem was didnt see the right docs who knew about this condition. These were top research docs in my region that solved this problem. They said when i came in they never seen such a train wreck down there since 1979. They wanted to remove my anus and put on a bag but said lets not do this until we try this drug. This drug did wonders my man.

Take care brother
B

Hi bherna1
I, too, had fissures for about 4 years, and tried everything from surgery, ointments, botox injections, sitz baths, etc. etc. Finally, I asked my dr. what he thought about trying an anti-fungal cream, as I had read about it on another blog. My fissures healed up in 4 days, it is MY MIRACLE cream. It may be worth a try to some people who just can't take it any more, and need something new to try.
Good luck to all AF sufferers everywhere.

Al

Wonderfull Bernard. You must be so happy
Yes I will ask my doctors about this. Ask for a biopsy to see if something is going on. Maybe I should travel to Dallas to see your doctors

Let me know Lars. They can accomodate just about anyone here from Europe and other countrys. I will be glad to help find a living arrangement for you to see them.

Thanks to all the kind words everyone has posted about my family situation.

Best regards
B

Skype: bherna1

Hey Bernard, I just read your story -- kudos to you for being persistent and finding a cure! Hopefully your family situation follows suit as well, they look beautiful in your profile pic

Do you mind if I ask whether you had any other symptoms aside from the fissures and fistulas? I understand that Crohn's is supposed to cause some systemic symptoms as well and wonder if you had any.

The reason I ask is that I had two fissures that healed up a while ago with BOTOX and nitroglycerin ointment. But just this week I've had pain in a new, different area that's accompanied by some bleeding. I'm seeing the doc today to see try to figure out if it's a fissure or a hemorrhoid, but it just seems weird that things would be fine and then would derail again. I had a partial colonoscopy and barium CT scan plus all the usual inflammation marker blood tests that didn't show any problems, but I'm getting suspicious about some kind of underlying issue now.

yes i did have one unknown area that the scope couldnt find. As the professionals told me they would use the med to treat both areas. Both areas dont hurt and my digestive system is working better. This med i am on you have to take it for the rest of your life or else the issues will come back. I did have chills, low grade fevers, muscus in stools things like that are gone.
Thanks for your feedback.